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Thread: The verdict is Terminal- MMi members your help is needed

  1. #1
    Green Apple mumra06's Avatar
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    Default The verdict is Terminal- MMi members your help is needed
    As some of you may know, my daughter Lanie has been diagnosed with neuroblastoma. As the months went by, and chemo and radiation persisted, our pediatric Oncologist Dr. Mayer has made the final decision that she is terminal at 26 months old. Our CAT scan last Tuesday shows massive tumor growth, spreading into the kidneys and even her neck. My only daughter fights for life, and I am powerless.

    While our fight was tough, it is not over. We are now at home on Hospice care. The next two weeks are going to test our strengths beyond my imagination. I cannot fathom spending my last days with her, cherishing every moment and having family plan her funeral. It is absurd and makes no sense to me, but life is what it is.

    I would like to thank the MMI and MMMoto communities for your support throughout these trying times. Both communities were a place I could briefly take my mind off of my life, and learn. Thank You all..
    <form action="https://www.paypal.com/cgi-bin/webscr" method="post">
    <input type="hidden" name="cmd" value="_donations">
    <input type="hidden" name="business" value="6A7KZ5JKNMA2L">
    <input type="hidden" name="lc" value="US">
    <input type="hidden" name="item_name" value="Lanie">
    <input type="hidden" name="currency_code" value="USD">
    <input type="hidden" name="bn" value="PP-DonationsBF:btn_donateCC_LG.gif:NonHosted">
    <input type="image" src="https://www.paypal.com/en_US/i/btn/btn_donateCC_LG.gif" border="0" name="submit" alt="PayPal - The safer, easier way to pay online!">
    <img alt="" border="0" src="https://www.paypal.com/en_US/i/scr/pixel.gif" width="1" height="1">
    </form>
    Last edited by mumra06; 2009-09-25 at 06:44 PM. Reason: Donation Link

  2. The Following 3 Users Say Thank You to mumra06 For This Useful Post:

    Bo Troxell (2009-09-02), Dumba (2009-10-19), phreakwenci (2009-09-17)

  3. #2
    My heart and sincere condolences go out to you, Lanie, and your entire family. I cannot imagine how difficult going through such a situation can be. Stay strong. The entire MMi community supports you, now and always.

  4. #3
    Green Apple mumra06's Avatar
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    Thank You Greg

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    iPhoneaholic g0sbv's Avatar
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    After spending quite a while typing various reply's then reading them and then deleting them as they didn't look or read correctly at this sad sad time I came to the conclusion that its very difficult to know what to say at such a time the easy way would have been to not reply but I felt I should because sometimes its nice to know there are some people who care so with that I wish Lanie,you and your family strength and good luck..
    Ricky

  6. #5
    Community Manager Bo Troxell's Avatar
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    I just can not imagine your pain. Indeed sad that a precious little life is burdened with this awful disease. We all feel your hurt but couldn't even begin to understand how this has effected you and your family.
    Please supply us a link where donations can be made.
    Last edited by Bo Troxell; 2009-09-02 at 01:06 AM.

  7. #6
    Retired Moderator one1's Avatar
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    "Sometimes I think the Lord is testing me".

    In situations such as these it is important to remember that the lord will never give you more than you can handle if you have faith that everything has a reason. In cases such as these where there is a young life being given to you, then taken away.... or taken back from where she came if you will, it is to test the strength of your faith and your marriage. To make you stronger, so that in the future you may walk through any trials. To make you humble, so you appreciate what you are given from this day forward.

    Ultimately however these situations are to make you a better man. You should embrace it, understand it, and so that nothing is in vain........ make sure you live up to it.

  8. #7
    Green Apple mumra06's Avatar
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    My family is beginning to arrive at the house for a church ceremony this Sunday.
    Last edited by mumra06; 2009-09-06 at 12:57 AM.

  9. #8
    "The Napoleon Dynamite of MMI" coloradoxmfan's Avatar
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    As all the others have said, you are in our thoughts and prayers. Although we cannot imagine how you are feeling, know that you community here praying for you and your family.

    I echo what Blkcadi and One1 stated.

  10. #9
    Green Apple mumra06's Avatar
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    Thanks Colorado. AFter a very rough night and a slight fever, this mornings sunrise was the most beautiful ever. Hospice comes today, despite what the nurse says, they'll never take my sunrise away.

  11. #10
    Green Apple mumra06's Avatar
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    update 9/3/09: She hasn't opened her eyes for me in almost 2 days. For those with medical knowledge, she has stopped producing urine as well. Times are getting rough, but no one can take my sunshine away. I included a pic in my first post, she is my little angel. We had just returned from the hospital in this picture. Note the pressure dressing where her portacath was. Without the catheter, she must eat on her own. But she is not.
    Last edited by mumra06; 2009-09-25 at 06:45 PM.

  12. #11
    Community Manager Bo Troxell's Avatar
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    This is breaking my heart, I can only say that my thoughts and prayers are with Lanie. Stay strong my friend.

  13. #12
    "The Napoleon Dynamite of MMI" coloradoxmfan's Avatar
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    My continued thoughts and prayers to you and your family.

  14. #13
    Green Apple mumra06's Avatar
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    Thank You all.
    Last edited by mumra06; 2009-09-25 at 06:46 PM.

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    Britney Spears of MMi Zeal's Avatar
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    :<
    EDM

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    Green Apple mumra06's Avatar
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    We are blessed today. We are having a yard sale to try and offset the piling medical bills, the least of which is $2432.68. My mother is selling her Macbook to the Pawnshop for 640.00. Lanie is still sleeping. Heart rate spiked to 130's at about 2 AM. Hospice nurse and chaplain came over by 3 AM. Its been a long night. Thanks for your prayers everyone. If you'd like to help here is a donation link.GOD BLESS.
    <form action="https://www.paypal.com/cgi-bin/webscr" method="post">
    <input type="hidden" name="cmd" value="_donations">
    <input type="hidden" name="business" value="6A7KZ5JKNMA2L">
    <input type="hidden" name="lc" value="US">
    <input type="hidden" name="item_name" value="Lanie">
    <input type="hidden" name="currency_code" value="USD">
    <input type="hidden" name="bn" value="PP-DonationsBF:btn_donateCC_LG.gif:NonHosted">
    <input type="image" src="https://www.paypal.com/en_US/i/btn/btn_donateCC_LG.gif" border="0" name="submit" alt="PayPal - The safer, easier way to pay online!">
    <img alt="" border="0" src="https://www.paypal.com/en_US/i/scr/pixel.gif" width="1" height="1">
    </form>
    Last edited by mumra06; 2009-09-06 at 12:52 AM.

  17. #16
    Green Apple mumra06's Avatar
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    Update. 9/7/09 Lanie woke up early today, and wanted to play with the flowers the neighbors dropped off. After about an hour and a half she was asleep again. In the past two days she has only taken in about 5 ml of fluid. Still no urine. The abdominal swelling is incredible.

    On a brighter note we have one partial eyelash growing back!!! The chemo of course made her lose all hair, but since it has been about two weeks, one has decided to comeback. Amazing.

    Yard sale didn't do to bad $65.00 was the total.
    Last edited by mumra06; 2009-09-25 at 06:48 PM.

  18. #17
    Community Manager Bo Troxell's Avatar
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    She looks beautiful in the picture, you have been blessed with a awesome gift. The joy she has brought to you will live forever. Please give her a hug for me.

  19. #18
    Green Apple mumra06's Avatar
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    I gave her a hug for you blkcadi. Sometimes wish moments like the one in the photo would never end. When she falls asleep, she twitches in my arms. Only with pain medication does she truly get comfortable.

  20. #19
    Green Apple mumra06's Avatar
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    Default Update
    For all those who follow this, Thank You. It's been a little while since I've updated. Perhaps because things deteriorate quickly and then rebound a bit. She still hasn't made urine, yet as of yesterday was taking in small amounts of fluid. Lanie still has the fever, but it is to be expected. As her renal system shuts down, the waste becomes toxic. I'm sorry to be so graphic, but it helps me cope. The next stage (final) will be upon us shortly, as she falls into sleep (comatose). She will not awake. Her passing will, according to the Hospice staff be within hours to 3 days. I can only smile and cherish the time we have left together, and do my best to let her know that she will always be daddy's girl....

  21. #20
    Community Manager Bo Troxell's Avatar
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    Can not begin to tell you how proud you make me feel. Your strength and faith is a inspiration to me. My sincere best to Lanie and the Angels that watch over her.

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